What is death?

When I come to visit now, mom has no idea who I am anymore. It is over. For my last 3 visits, there has not even been a moment when she seems to know who I am. Why does that hurt so much?

We all saw it coming. The literature is very clear that this is how the disease progresses. I can do the emotional math and yet I cannot get my heart to stop yearning. This may be the ultimate pain of a mental disease. They are still alive but you can not gain access to them anymore. Death has to be redefined. She is alive. She is in pretty good health. Our caregivers really enjoy her and she seems to enjoy them. She eats better than I do!

But she wanders. Sometimes she wanders with a little smile on her face like she knows something the rest of us don't and she's not sharing. Other times, she just wanders like she has lost something that will never be found no matter how long she looks. When she sits, she stares off into a place none of us can see. When she looks at me, she is vacant.

So is my mother alive or dead? I have no idea. I can't even define the most basic words of life anymore. I grieve but I'm not sure what for. I miss her even though she is standing right here.

I am, however, thankful that my anger seems to be gone. Somehow without talking to her, I've garnered a greater understanding of what life was probably like for her and why she was the mom she was. It has created a great compassion in me that has pushed out the anger that used to live here. I am grateful for that.

This weekend I came to visit and my Dad was sick. He seemed to start getting better as soon as I walked in the door. Maybe it was the antibiotics, but maybe hope and companionship are really the best medicine.

When I pray, all I have is "jesus". I am completely confused about all of it now, so I just pray "jesus" and hope he will fill in the rest.

I grieve when I come, but it is not without hope anymore. For many years it was just completely overwhelming and now its not so bad and my Dad, brother and I are closer than ever before.

How did God do that? No idea.

Jade

My father lost his dog last month. It was a heart breaking time for all of us. What an amazing dog she was! I really don't know how my father would have gotten through these years of mom's disease without Jade. She brought so much joy to Him as his "big boofer dog" and she ran like clock work in a world of chaos. She had a schedule in her head and she made sure everyone stayed on schedule. Up in the morning, snacks, and bathroom runs were around the same time everyday. No matter what was going on. As mom's memory faded she knew how to coax mom into more snacks as well. She was a true friend and a little fat at the end from all the extra snacks.

But she was also the safe companion my father needed to walk with him through all the madness of Alzhiemers. She never judged my Dad or gave him advice on how to proceed. Surprisingly she was a rather talkative dog in that my Dad supplied a running dialog with her as if he could read her thoughts. I suppose it is how the introverted create company without having to pick up the phone.

I have always had a lot of thoughts about what we need to do or think about for the future or fix about the present. My Dad has been gracious to listen and implement some of those things. But what he has really needed is a travel buddy and Jade did that for him. It was a big loss for him. We all felt it and my brother helped my Dad bury her behind the barn in the cold ground of winter.

As I've kept my eye on the situation at home, I've been looking for signs of depression from my Dad. But amazingly he seems to be doing well. After a dog dies in our family, I always hear the speech about how that was the last dog and how my father's heart couldn't handle another dog. But eventually another dog always shows up. So far no dog and Dad seems to be doing ok and spring is almost here. So I don't know if Dad is just in a better place or Jade just did her job really well, but we are all beginning to feel hope again. It feels like sunshine.